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Guidance documents

A Values-Based Approach to End of Life Care Planning for Young People with Learning Disabilities & their Families & Friends. 2017. University of Surrey with Kent, Surrey and Sussex Health trusts.

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Achieving Quality for People with Learning Disabilities. 2011. NHS National End of Life Care Programme.

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Staff training and support

A Comprehensive Guide to End of Life Care for People with Learning Disabilities. 2016. St Anne's Community Services.

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with people with an intellectual disability. 2018. The University of Sydney, Keele University in the UK, and Unisson Disability.

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2021. Presentation by Phoebe Mooney, Advanced Care Planning Nurse for people with learning disabilities.

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