ABOUT: Co-design
Click here for an easy read description of this part of the study.
In the third part of the study, we will bring together a team to look at what we have found in the first two parts of the study. This team will design a ‘toolkit’ that includes:
-
Approaches for end-of-life care planning for people with learning disabilities.
-
Resources to support this process (for example pictures, documents or videos).
-
Training for learning disability support staff to help people with learning disabilities to plan for the end of life.
We will use a process called co-design to do this. This means people with different backgrounds and experiences coming together to find the best ways to do things. Our co-design team will include:
-
Researchers with learning disabilities
-
Researchers without learning disabilities
-
Other people with learning disabilities
-
Learning disability support staff
-
A learning disability community nurse
-
Family members of people with learning disabilities
-
Other people who are involved in end-of-life care planning