In the first part of the project we wanted to find out what people are already doing to support people with learning disabilities to plan for the end of life. We wanted to find as many approaches and resources for end-of-life care planning as possible. This includes any documents or guidelines that are used, and hearing about how people do this planning together.

 

To do this, we searched for evidence about how people with learning disabilities are helped to plan for the end of their lives. We also wanted to hear from people about how they support people to make these plans. We wanted to listen to those who are involved in, or concerned with, the care of people with learning disabilities who are supported by learning disability services.

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The scoping review and survey have been completed.

 

You can find the resources we found on the TOOLKIT page. On 18th April 2023 we held a webinar to share the findings with you. Check out our WEBINAR page! We have also published an article in an academic journal called Health Expectations. You can find the article here.