In the final part of the project, we will test out the toolkit of approaches and resources that we developed earlier in the project. We will train around 42 learning disability support staff members to use these approaches and resources with people they support. They will then try them out to help people they support to make end-of-life care plans.

 

We are testing the following four resources in the study:

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• Let's talk about funerals pictures

• My funeral cards

• Am I Going To Die? Book Beyond Words

• When I'm ill cards

 

 

 

 

 

 

 

 

 

 

 

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Support staff will be asked to fill in feedback forms about their experiences and to join focus groups to let us know how useful they found the resources, approaches, and training.

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The evaluation study has now been completed. We are using the feedback to finalise the toolkit. The toolkit will be freely available from 20 June 2024. We are also writing up our findings into an article to be published in an academic journal.